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Sunday, April 13, 2025

When Advocacy Becomes a Lifeline: A Conversation with Melissa Winger

 



When Advocacy Becomes a Lifeline: A Conversation with Melissa Winger

Episode Recap: Life Unscripted Podcast with Rosabel

Author Melissa Winger joins the Life Unscripted Podcast to share her journey as a mother advocating for her son with complex medical needs. In this powerful episode, she reveals the emotional toll of navigating a broken healthcare system—and why her story is a call to action for all of us.


🩺 Real Stories, Real Impact

In a profoundly moving episode of The Life Unscripted Podcast with Rosabel, I interviewed Melissa Winger, a mother, advocate, and author of Who Cares? The Real Patient Experience. Melissa’s story is a testament to what it means to advocate not just with passion but with resilience—through heartbreak, finterviewednd moments of isolation that many families quietly endure.

Melissa became a mom at 18, stepping into a world of medical unknowns when her son was born with rare genetic conditions that went undiagnosed for months. From being dismissed by ER staff to navigating a maze of home health agencies, she quickly realized that families like hers aren’t just underserved—they're often unheard.

“Why am I always having to defend my child’s existence?” she asked. A question no parent should ever have to voice.


🎙 What We Talked About

In our conversation, Melissa opened up about:

  • The emotional toll of long-term medical caregiving and advocacy.

  • What’s broken in the healthcare system—and how poor reimbursement and high burnout drive providers and families alike to the brink.

  • How can we advocate without becoming adversarial, and why does a partnership approach often yield better care?

  • Moments of light, like when a single pediatrician simply said, “You’re doing a great job.” Those words changed everything.

Melissa’s story goes beyond one family—it’s a lens into the lives of thousands navigating fragmented care systems while trying to live fully and love deeply.


📖 About Who Cares?

Melissa’s book isn’t just her story—it’s an exposé on the structural failures of our healthcare system, backed by deep research. Each chapter begins with a personal experience and evolves into a broader discussion about systems like home care, patient safety, and the la deep-researchedg-term impact of inaccessible or dismissive healthcare.

If you’re a caregiver, a provider, a policymaker—or simply someone who wants to understand what genuine patient-centered care should look like—this book is for you.


🎧 Want More?

Melissa’s audiobook version of Who Cares? is coming May 2025—perfect for those who prefer to listen while driving, walking, or reflecting. And if you haven’t yet...

👉 Visit her website: www.whocaresbooks.com
👉 Follow her on social media: Links available on her site
👉 Reach out: Melissa welcomes conversations and opportunities to advocate for patient-centered change.


🔔 Subscribe and Stay Connected

If Melissa’s story inspired you, please subscribe to The Life Unscripted Podcast with Rosabel. Each episode features raw, honest, and relatable conversations that matter.

🌟 Leave a review — It helps amplify the stories that too often go untold.
📬 Send feedback or share your story — We’d love to hear from you.

Together, we can build a world where empathy, advocacy, and care are the norm—not the exception.

Until next time,
—Rosabel


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Disclaimer

Disclaimer: The information shared on this website and in all Rosabel Unscripted or Rosabelievers materials is for educational purposes only and does not constitute medical or legal advice. Always consult your healthcare provider for guidance specific to your situation.

For downloadable guides and resources, visit the Rosabelievers Resource Center.

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